Patients with amyotrophic lateral sclerosis (ALS) already have in Castile and León the ordinance that regulates the new particular degree of dependenceIII+, for those who require permanent care when the disease is very advanced. The Community is the … “first” to implement this category of social benefits after the State presented the new legislation last October.
This was announced this Monday by the Minister of Family and Equal Opportunities, Isabel Blanco, who explained that the text published this Monday in the Official Gazette of Castilla y León (Bocyl) lays the foundations for a adapt regional regulations to state legislation among other things, to recognize the economic benefits linked to this new, recently created level. A category which includes, in addition to the most affected ALS patients, those who suffer from a complex disease also in an “advanced and irreversible” phase.
This is an order, as indicated by the Vice-President of the Council during her visit to the “La Fuencisla” residence of the Provincial Deputation of Segovia, which determines the conditions, procedures and procedures for people in “total dependence” who require “instrumental and personal” assistance to cope with daily life due to respiratory problems or dysphagia.
Nearly 10,000 euros
As Isabel Blanco points out, the State envisages that, thanks to this new category, users will be able to access a financial benefit of up to 9,900 euros per month to cover personal assistance or home help expenses.
This grant will be partly financed by the State and another by the autonomous communities, although, from the Regional Executive, the councilor indicated that for those who “do not have enough” with this amount, the Junta de Castilla y León “will continue to finance” the difference or “the hours they need”, because what “concerns” the regional administration is “caring for and assisting those who need it most”.
Degree of dependency III+ can be requested via the regional government website and the procedure will be treated in a “priority” manner, as clarified by the service headed by Isabel Blanco.
In the same vein, the head of Family and Equal Opportunities highlighted that Castilla y León was also the first autonomy to launch “a comprehensive care system” for people with ALS with assistance “24 hours a day, seven days a week” in collaboration with the Elacyl Community association.
Thanks to the Intecum program, promoted by the ministry, these people received personal assistant which can be permanent “according to their needs” and the requests of the families. In addition, “architectural work was permitted” in homes, psychological support “necessary” also for their loved ones and “all“technological devices” required.
Today, despite the new regulations that approve the special grade for patients with the most advanced disease, in Castile and León “the service will continue to be provided” and to take care of cases that, even if they do not reach this specific level (III+), also require support and special measures, said the advisor.
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