On Tuesday, December 2, the Madrid region became the first region in Spain to do so Regulating the will of people with disabilities In cooperation with their families before the death of their parents.
This measure joins other measures promoted by the regional government, e.g Enable children with disabilities to live together in care homesPhysically or intellectually, parents sometimes need care due to old age.
The project, published in the Official Journal of the Community of Madrid (BOCM), is called the “Life Plan” and contains different sections.
It considers several everyday situations that allow you to reflect all your personal preferences and habits: from How many hours they want to sleep or if they want to follow a certain diet, How often to exercise, who to notify if sick, what visits they will receive or what recreational activities they prefer.
You can also indicate whether you want to share a room or not, Participate in the activities of your association, center, or parish Or explain the most effective treatments for them.
Moreover, the Community of Madrid itself assured this newspaper that the document can analyze the development of a disabled person over the years.
For example: You can set sports guidelines for certain years, as well as specify other itineraries to follow when you reach an older age.
The document will be completed voluntarily and, as the Community of Madrid emphasizes, it does not replace the support measures provided for in Law 8/2021, but rather complements them, by providing a detailed picture of your wishes in everyday life situations and also in private moments of vulnerability.
The life plan includes a specific section on health, which everyone can do Indicates who should be notified in case of illness or hospitalization, as well as what information you want to share and with whom.
It also includes a mass of contacts, visits and calls, aimed at ensuring that their wishes regarding who can contact them and under what circumstances are respected.
Social participation is another focus of the document.
The form allows you to express what activities make you feel good or bad, what helps you manage states of anxiety or nervousness, and what Leisure routineOr volunteer work or community life that they want to maintain.
They can also leave in writing if they want their photo taken and published in the activities of their centre, association or diocese, exercising their right recognized in the Data Protection Regulations.
In terms of support, the life plan offers the option of detailing which type of therapeutic interventions are helpful in times of emotional release and which are not.
Likewise, it includes preferences regarding the professionals they care for – from the way they should speak to the choice of a reference person – and allows for the designation of someone they trust to know the content of a document when that person cannot exercise their authority themselves. Legal capacity at a specific time.
Life plan
In short, what is led by the Ministry of Family, Youth and Social Affairs Anna Davila is to create a tool that allows people with disabilities to express the way they want to live.
In this way, they can prevent parents from worrying about what will happen to their relatives when they die.
Madrid insists that this “life plan” guarantees access to people with disabilities Live your life with dignity and fullness In addition, giving peace of mind to their family members who are their current caregivers.
The tool is accessible and adapted to all disabilities, so it guarantees something as basic as the participation of the whole family in making this decision. Both people with disabilities and their loved ones.
In the same vein, the Life Plan will facilitate the creation of specific units in new nursing homes so that children with disabilities can live with their parents, with independence and personal attention, but sharing time and space to maintain an emotional bond. This is a proposal that was previously presented by the region.
This measure, as confirmed by sources close to the province of Dávila, is part of Madrid’s strategy for caring for persons with disabilities, Horizon 2028, which consists of 316 measures and one. An investment of 4.8 billion euros.