Guadalajara is the city where Noko Romero was born and livesstar of ABC’s SCA7 ataxia documentary that premiered on our website in June. Guadalajara will be the place where it will be shown for the first time on the big screen. Will this be … Afternoon at 7:00pm at the Moderno Theater, with a subsequent discussion featuring Romero himself and the author, ABC journalist David Del Rio.
The documentary tells the story of Noko Romero and his family, four of whom suffer from or have been affected by SCA7, one of the most devastating types of ataxia, which is passed from parent to child and leaves the sufferer blind and bedridden. but This is not only a story of suffering, but above all a story of resistance and hope.. Some sentiments come to light from the trip Nocco and David took to the state of Veracruz in Mexico, where there is a very high concentration of cases of this disease.
The report also talks about the certain possibility of finding a treatment that, although it does not cure someone who has inherited SCA7, at least stops or can mitigate its terrible effects. All eyes are now on the two researchers: Jonathan Magagna in Mexico and Zbigniew K. And Szolek in Florida.
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